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« Sotomayor Judging Disability | Main | Action Alert: Call your Representative for Long Term Services and Supports on Thursday, June 4 »

May 30, 2009

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Arthur Springer

30 May 2009

• MYTHS & PRIORITIES FOR THE DISABILITY RIGHTS MOVEMENT

• I have been away from the internet for a few days, tending to an exacerbation of a real disability treated casually by the System, and returned today, only to find an inbox full of hysterical text and headlines that do not match with the stories they purport to describe:

• “ Below you will find articles representing various aspects of the debate around Supreme Court Nominee Judge Sonia Sotomayor and her disability, Type I Diabetes.... Sotomayor Faces Job Discrimination for her Disability ; From the Huffington Post (5/14/09) ..... Sotomayor Faces Employment Discrimination for her Disability - From NPR (5/26/09) ... etc.

• To cut to the chase, diabetes is a chronic health problem, not a disability. The only chronic health problem I know of that is defined as a disability on the basis of diagnosis alone, without any additional supporting evidence of limitations on major life functions, is HIV/AIDS.

• It is not helpful for disability advocates and experts to muddy the waters about this matter. The political priority for the disability rights movement in America today is implementation of the Americans With Disabilities Act as amended by the Congress and signed by the president in 2008. The new law is a long step away from astonishing abuses of power by the Supreme Court in the Rehnquist era. Our movement was set back for about a decade. Now it is time to move on.

• We have barely begun to digest this important step forward and do what is needed to ensure that the practices of government, commercial and nonprofit institutions take this change into account in their policies, programs and day to day operations. In New York, socalled disability advocates have done nothing about the new Act, and I am involved in one serious effort to remedy that failure by applying the new law to the health care system. It requires banging some important heads against the wall, and it is working, slowly, but better than nothing at all.

• But overly zealous misinterpretation of the law and assertions that chronic diseases are by definition disabling do not help at all. What is at issue runs far deeper in American culture than the obtuse prejudices of a Rehnquist. Custom and politics have created a distortion of disability matters at least as serious as the Rehnquist court’s decisions, if not more so.

• Custom and politics, not the Congress or the Supreme Court, have defined disability for too long. This tradition tends to limit application of the laws to politically correct disability, favoring the 13 percent of disabled Americans with mobility impairments, and ignoring the needs of the other 87 percent.


• The 2008 amendment marks another attempt to correct this bias (PUBLIC LAW 110–325—SEPT. 25, 2008 122 STAT. 3553 sec. 4
at http://frwebgate.access.gpo.gov/cgi-bin/getdoc.cgi?dbname=110_cong_public_laws&docid=f:publ325.110):

SEC. 4. DISABILITY DEFINED .....
(a) Definition of Disability.--Section 3 of the Americans with
Disabilities Act of 1990 (42 U.S.C. 12102) is amended to read as
follows:
‘‘SEC. 3. DEFINITION OF DISABILITY.
‘‘As used in this Act:
‘‘(1) DISABILITY.—The term ‘disability’ means, with respect
to an individual—
‘‘(A) a physical or mental impairment that substantially limits one or more major life activities of such individual; (B) a record of such an impairment; or (C) being regarded as having such an impairment .....

‘‘(2) MAJOR LIFE ACTIVITIES.—
‘‘(A) IN GENERAL.—For purposes of paragraph (1), major life activities include, but are not limited to, caring for oneself, performing manual tasks, seeing, hearing, eating, sleeping, walking, standing, lifting, bending, speaking, breathing, learning, reading, concentrating, thinking, communicating, and working.
‘‘(B) MAJOR BODILY FUNCTIONS.—For purposes of paragraph (1), a major life activity also includes the operation of a major bodily function, including but not limited to,
functions of the immune system, normal cell growth, digestive, bowel, bladder, neurological, brain, respiratory, circulatory, endocrine, and reproductive functions.”

This language, lifted from the Rehabilitation Act of 1973, successfully translates the vague idea of disability into reality, into practical definitions that can be used to campaign for major institutional accommodations to the 20 percent of all Americans -- about 60 million people -- with genuine disabilities.

• What we often face in those institutions is the bland assertion that “we treat everyone the same. We don’t discriminate.” Sorry, folks, that’s just not good enough.

• Hopefully, we will now have a new series of federal court decisions straightening out the ignorant, and the conservative hardheads who have disrupted and delayed the process of accommodation that began in 1990 and was stalled by the Rehnquist court starting in 1999.

• Hopefully, the Supreme Court, with Justice Sotomayor in the majority, will correct this tragic detour in disability law.


• Hopefully, those who do not know any better will discover that wheelchair ramps and curb cuts have nothing to do with the accommodations needed by the 87 percent of Americans with disabilities who do not have mobility impairments.

• For example, people in treatment for cancer needs lots of nutritious snacks throughout the day. Memorial Sloan-Kettering Cancer Center understands this. (Visit the waiting areas in their clinics.) Not many others do.

• People with lung disease need ventilation, air-conditioning, water to offset dehydration, and minimum waiting times because of extreme fatigue that greatly limits time for activities outside the home.

• Each health problem causing a disability requires a specific set of accommodations of its own. The job ahead is to define them and get them into the heads of the people who run things.

• Read the 2008 law. It is must reading for anyone who wants to play a constructive role in this important area of American life. It is a strong repudiation of the Rehnquist court’s conservative bias and a source of tremendous hope.

The heart of the matter was stated clearly by the Congress in 1973 (at
US Code TITLE 29 > CHAPTER 16 > GENERAL > § 701 § 701. Findings; purpose; policy):

“ Congress finds that .....

“ (3) disability is a natural part of the human experience and in no way diminishes the right of individuals to— (A) live independently; (B) enjoy self-determination; (C) make choices; (D) contribute to society; (E) pursue meaningful careers; and (F) enjoy full inclusion and integration in the economic, political, social, cultural, and educational mainstream of American society .....”

Translating that simple and powerful idea into reality, and not muddying the waters, is our work now and will be for generations to come. Equipped with this simple and powerful idea, we cannot fail. Hold to it as if your life depended on it, because it does.
Arthur Springer
Lay Advocate for People With Disabilities
as99@verizon.net

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